Tuesday, May 28, 2013

Talk at Tea Time


      It was a lovely Sunday afternoon when we gathered at my house to talk and have tea.  Nancy brought her lovely and dainty tea set. We sampled civet coffee,  strawberry kiwi tea, and spanish-style cocoa (tablea). My sister made cassava cake topped with flan that morning. Nancy took over KP duty to bake blueberry and pumpkin scones, to be drizzled with devonshire cream later. She arranged them on a platter decorated with lacy doilies, together with the madeleines she baked that morning.  Then Ronaele's scrumptious strawberries, cantaloupe slices and Bing cherries graced a tier of plates.  Nancy and Mama Lourdes couldn't help sampling the cucumber sandwiches they were making. all I did was add the edible mini-flower decor on the slices of sandwiches. Eric thoughtfully brought cocoa puffs from Liliha Bakery. When everyone expected were there, we sat at the table. Jan modeled the raised pinky for Eric to emulate. That started the laughs and the interesting discussion at table.  

       The afternoon tea party was soooo fun we thought we should have more of them in the future.  Mahalo to the few who spent part of their Memorial Day weekend at this event!


A bouquet of flowers from Nancy

Men enough to try drinking tea with pinkies raised: Jan and Eric

The delicious spread
Nancy made these: round blueberry and triangle pumpkin scones and madeleines 
Cucumber tea sandwiches
The ladies: Mama, Ronaele and Nancy



Sunday, May 19, 2013

Caregiver Series 3: Medical Alert Systems -- A Tool for Quality Living

      Originally targeted to seniors who are prone to falls, medical alert systems (MAS) can also be useful in preventing the same from occurring in the ALS population.  Problems concerning balance, immobility, difficulty in communicating are among the many reasons why the use of MAS should be seriously considered.
      This month's support group meeting guest speaker, Dr. Cullen Hayashida, a gerontology sociologist by training, and President of Kupuna Monitoring Systems, a MAS distributor in Hawaii, introduced the topic to the group.  I took these notes during the meeting.

     Fall risks in the home such as unanchored area rugs, unlit walkways, and carpets/floors in disrepair, should be discarded or fixed.  The extent of harm due to the impact of falls can be mitigated by learning by practice, a proven "technique of falling." Expert parachutists are practitioners of this technique.  Although one reflexively puts out one's arms to break one's fall, by frequently practicing this technique, one may be able to override this reflex to protect one's body.  The technique involves holding arms close to the torso and distributing the impact of the fall on different parts of the body.
      Once a person has fallen, gradual getting up from the ground and aiming to get one's bearings- turning to one side, crawling on fours towards a stable chair or surface, grabbing the chair for support while getting up on one leg first, then the other, and sitting upright for a few minutes before moving away- aims at getting one's bearings first and over the initial shock (or embarrassment).

     Medical alert systems can vary from the very simple - bells, and baby monitors - to ones requiring mediation by call centers.  The latter consists of a button used by the person, a receiver base unit in the home and a central monitoring center.  The service starts with choosing the appropriate button to use - for example, worn as a pendant or on the wrist like a watch. It is important to evaluate the products based on reliability (Will it work when I need it?) and convenience (Will I be able to activate it?).   It is recommended that you use a local company for ease of interaction regarding the service; to rent rather than to own (as the technology is young and continues to update; and to choose a service that may be cancelled at any time.  Current research on products involves use of mobile alert systems that combines the use of fall monitors, cell phones and GPS locators, especially for those who are not home-bound.

     Medical alert systems can assist in removing some of the barriers for a person with ALS to live a quality life. It is worth checking out whether it would fit one's lifestyle and abilities.

Sunday, May 5, 2013

Caregiver Crafternoon: A Time to Cherish in Memory

     Penny's was the place to be this Sunday afternoon.  When I got there, Ronaele and Kathy K were already picking out their cardstock while Penny was giving pointers on making choices.  The scent of Ronaele's newly baked bread was seeping through slightly open ziploc bag to let it cool some. The spring greens were already peeping off their plastic containers and I thought I saw some tapioca and fruit when I came in.  The table was piled with craft supplies and equipment. Soon Phyllis and Kathy O came, one after the other. Serious crafting began, accompanied by background chatter. Penny, acting as the craftmeistress that she is, gave advice here and there. We were sorry Nancy was laid down with a bad cold and Dale was enjoying a baptism in Waipahu.  We were sorry they were missing out on a wonderful way to relax, be creative and enjoy the company of lovely ladies. We are sorry, too, that you were not able to join. Perhaps, the next time. Meanwhile, look at how much fun we had!
The crafty ladies: Phyllis, Penny, Kathy K, Ronaele and Kathy O.

Phyllis at work

Kathy O sorting paper with Phyllis helping


Ronaele stamping it!

Penny helping with the cutter.

Owls!!!

The owl-making machine

Ta-da!

KathyK with her cards

KathyK and her products

Phyllis and her cards

me and my owlcards

Penny playing her other role: hostess

"Spirit" salad and tapioca/fruit

Home-made bread from Ronaele and Kathy K