E komo mai! Welcome!
Please. Leave your slippers at the door and come in. It's cool by the lanai where the trades are gently stirring the palm fronds.
You. Us. Here in Hawaii and elsewhere, we, who are in a shared journey to thrive amidst the challenges of disability, chronic disease and family stress as a result of Amyotrophic Lateral Sclerosis (ALS).
Come! Sit in the lanai and have some of Tutu's iced tea.
Let's talk story.
Huge yard sale to benefit Hawaii ALS families. New or gently-used household items, kitchenware, clothes, tools, fashion accessories, and sundry treasures. AND home-baked cookies!!!
WHEN: THIS Saturday, June 25, 8 am to 3 pm
WHERE: 244 Akiohala St, Kailua, HI 96734
NO EARLY BIRDS, please!
Come one, come all! Plenty of stuff for everyone, from keikis to tutus!
*******************************
"Lei of Remembrance," Memorial Ceremony, TODAY, May 26, 2016, 5:15 pm, State Capitol Rotunda
We have almost 200 people who died since 1998 when we started collecting this data. Help us remember and never forget. Potluck follows. Acknowledging the help of Lilette Subedi (Oli), Jonah Okano and Marlene Minori for videography, and the Your Friendly ALS May Celebration Committee and their friends, for everything else good.
Mahalo nui loa!
___________________
"Mahalo, Hawaii" Signwaving, TODAY, May 27, 2016, 4:30pm, State Capitol Curbside
Thanking our residents for supporting our cause and rallying for their help in the future!
________________
Tea Party and Talk Story, May 26
Caregivers, family members and friends of PALS are invited to a Tea Party (non-partisan, non-political; strictly hedonistic, social event) and Talk Story Session at my house, 244 Akiohala Street, Kailua on Sunday, May 26, 3pm. Please RSVP (256-3932) by May 24, Friday.
Looking forward to a fun afternoon!
CAREGIVER CRAFTERNOON, April 28
3pm, THIS Sunday, at Penny's house at 39-A Niolopa Place, Honolulu, HI 96817. All CAREGIVERS invited, to show off talent in cardmaking, or simply to mingle and relax. Finished cards make great gifts (Mother's day is around the corner!).
Pls RSVP 256-3932. Please bring glue, scissors and/or two-way tape (if crafting) and an ingredient (except lettuce) for a "spirit salad," which we will share.
See you there!
2013 April Come She May....
9, Tuesday: Regular MDA ALS Support Group Meeting, 5:30-7:30 pm, Queen's Conference Center; Divina Robillard facilitates " Communication Devices," with Kevin Forde-Nihipali discussing Tobii devices. Discussion will also include low- and mid-tech devices. Poltuck; parking FREE across the street at DOH (Kinau Hale).
13, Saturday: MDA Hawaii Annual Soiree Fundraiser; 5:30 pm, Royal Hawaiian Hotel Grounds - Food and Wine-Tasting from different vendors, silent and live auction... Fun semi-formal event on the waterfront hotel grounds; individual tickets @$125 per person, with $55 tax-deductible. More info/register on www.mdasoiree.com
Sunset Social on Tuesday, the 12th!
Instead of a meeting on Tuesday, March 12, the group is headed to Picnic Site 30 Ala Moana Beach (at the Ewa entrance to Magic Island, across the Waikiki-side concession building) to watch the sunset and have a potluck dinner. Starts at 5pm, with set-up at 4. Please bring a dish to share and a sweater to keep you warm when the sun goes down. Be there for lots of laughter, chatter, and ono grinds!
2013 March
2, Saturday: First Caregiver Breakfast; Zippy's Restaurant, 59 N. Vineyard Blvd, Honolulu, HI; 8 am. See blog post for details.
12, Tuesday: Regular MDA- Hawaii ALS Support Group Meeting; Queen's Conference Center, 5:30-7:30 pm; Free parking at Kinau Hale across the street; Potluck; Wear something to keep you warm:)
30- Saturday: Baby Shower for Tami and George Honzaki; At Paul Gagnon's home: 541 Pauku St., Kailua Hi 96734. More details to follow.
FUN-FEBRUARY 2013
2, Saturday - ANNUAL MDA MUSCLE WALK; 9am to 12 nn; Hawaii State Capitol, along Beretania Street. Show your support for MDA and its services to ALS families in Hawaii. Call 593-4454 for more info. Lots of fun for folks. Roll, run, race, walk, sashay, whatevah! Bring $$ to share, keiki, pets, tutus. Freebies, fun, zumbathon guaranteed. FREE parking at Kinau Hale if you call MDA for the pass you can print. Other parking options will be given. Be there!
12, Tuesday - REGULAR MDA ALS SUPPORT GROUP MEETING; 5:30-7:30 pm, Queen's Conference Center; potluck; FREE parking across the street at Kinau Hale (DOH); please bring something to keep you warm . See you then
March: Where 2010 REALLY Starts
I apologize: Idk where the first two months went. All I know is that I better write something about March before it goes where the other two are.
2, Tuesday - Free Demo: Tobii C Series at Assistive Technology Resource Center, 2-4 pm; 414 Kuwili Street. Parking on Lot at Kaaahi Street (off of Dillingham Blvd.) Tobii is a communication device which can use a varitey of switching methods including eye control. Great opportunity for people who are looking to need a device soon.
9, Tuesday - Regular MDA ALS Support Group Meeting; Queen's Conference Center Rm 204; 5:30-7:30 pm. We will share thoughts generated by our panel discussants' s comments at last month's meetings. Also, we can share our own successful methods for fighting depression and keeping it together while living with ALS. Potluck, as usual. Let Divina know if you need a parking permit for the QCC lot. Also bring/wear warm clothes (they keep the place cool to keep the machines happy:) See you all there!
12, Friday - Aloha Friday Pau Hana and Farewell Sunset Potluck Dinner for Renee and Joe Cochran who are moving to Las Vegas to be near family; Ala Moana Beach Park; Will try to arrange for Site Number 31 (our favorite across the concession stand, Waikiki-side of the park, close to the bathroom and parking lot for Magic Island. Time: Dinner is at 5:30 pm. but Nancy and Divina will set up at 3 so you can be there around that time, too... Map will be posted ASAP. Look for the MDA banner! Come one, come all! Great way to welcome Spring!
27, Saturday - Cardmaking Crafternoon, 2pm; Penny Chun's home at 39-A Niolopa Place. Guaranteed fun-filled as we make cards for our own use as well as for HALS to send to our ohana. There will be lots of talk story, munching and more talk story and yes, lots to laugh about. And yes, we will also produce greeting cards:) Please bring a pair of scissors, any craft paper you may have and ONE (1) ingredient (other than greens) for a salad that Penny will put together. Drinks provided. Bring your own jokes. RSVP: divina@hawaii.edu
Not so fast now, November!
Somewhere towards the end of November, we truly get into the Christmas zone - my happiest time of the year. This year will be less happy as our daughter, her husband and our three little angels - DJ, Tiki and newborn Z-boy - will be having their first white Christmas in Washington. But the traditions that ring in this time of the year will keep us all light-hearted and jolly as we think of our loved ones far from home creating their own Christmas traditions that will keep their own families warm and comfortable throughout the years. Then of course, there's Thanksgiving! The time we not only eat turkey&co. but also remind ourselves all the blessings we got through the year, especially those that came in disguise (like ALS)...
10, Tuesday - Regular MDA ALS Support Group Meeting, 6-8 pm, Queen's Conference Center. Room TBA. We will have GRRRREAT panel composed of Dr. Dan Davis, internist, better known as Peggy Chun's doctor; Kathy Krammer, Queen's Speech Therapist, and Dianne Brenessel, Queen's Respiratory Therapist. Please email your questions to the panel to divina@hawaii.edu. Also, special surprise for Caregiver Month!
26, Thursday - Happy Thanksgiving day! Enjoy turkey, family and other heart-warming things. But please don't forget to reflect on events, gifts, graces, blessings, etc. that we have received over the year and give thanks for them!